66th ASH Annual Meeting: 900. Health Services and Quality Improvement: Hemoglobinopathies: Navigating and Optimizing Healthcare Systems

Symposia: Health Services and Quality Improvement: Hemoglobinopathies Oral and Poster Abstracts
Oral

Research, Sickle Cell Disease, Artificial intelligence (AI), Adult, Epidemiology, Clinical Practice (Health Services and Quality), Translational Research, Clinical Research, Health outcomes research, Health disparities research, Hemoglobinopathies, Pediatric, Diversity, Equity, and Inclusion (DEI), Supportive Care, Patient-reported outcomes, Diseases, Neonatal, Real-world evidence, Biological therapies, Treatment Considerations, Registries, Young adult , Emerging technologies, Technology and Procedures, Human, Study Population, Transplantation (Allogeneic and Autologous), Machine learning, Newborn Screening

Hall B (San Diego Convention Center)

Moderators:

Ashley M Jenkins, MD, MSc, University of Rochester School of Medicine and Dentistry and Surbhi Shah, MD, Mayo Clinic

Disclosures:

No relevant conflicts of interest to declare.

These oral presentations highlight research investigating ways to improve healthcare delivery and access in patients with sickle cell disease.

9:30 AM

517

Presence of Negative Descriptors in Notes about Patients with Sickle Cell Disease Compared to Other Stigmatized Patient Populations

Austin Wesevich, MD, MPH, MS¹, Alexandria Vangelatos, BA¹^*, Michael Sun, MD²^*, Elizabeth L. Tung, MD, MS³^* and Monica E. Peek, MD, MPH, MSc³^*

¹Section of Hematology/Oncology, Department of Medicine, University of Chicago, Chicago, IL
²Department of Medicine, University of Chicago, Chicago, IL
³Section of General Internal Medicine, Department of Medicine, University of Chicago, Chicago, IL

9:45 AM

518

Outpatient Hematopoietic Stem Cell Transplant for Adult Sickle Cell Disease Patients Is Safe, Reduce Inpatient Bed Utilization and Improve Access to Care

Mohsen Alzahrani, MBChB^1,2,3,4, Ahmed Alaskar, MD^1,2,3,4, Ayman Alhejazi, MD^1,2,3,4^*, Abdullah Alsaleh, MD^1,3,4^*, Husam Mazin Alsadi, MD^1,4^*, Mazin Mohamed Abdulsalam, MD^1,2,4^*, Mohammed Bakkar, MD^1,4^*, Khalid Alharbi, MD⁴^*, Hind Salama, MD^1,3,4^*, Abdulrahman Al Raizah, MD^1,3,5, Ayman Ibrahim, MD^1,4^*, Ayel Yahya, MD^1,4^*, Khalid Aldosari, MD⁴^*, Sumaya Altamimi, MBBS⁴^*, Abdul Rauf Ghori, MD^1,4^*, Nour Ibrahim, MD⁴^*, Usman Maitla, MD⁴^*, Naveed Qureshi, MD⁴^*, Mohammed Snnallah, MD⁴^*, Inaam Shehabeddine⁴^*, Tahani Alanazi⁴^*, Rasha Ahmed⁴^*, Amani Alharbi⁴^*, Suha Alkhraisat⁴^*, Isam Mahasneh⁴^*, Hamza Alquraan⁴^*, Afnan Alzaidi⁴^*, Eman Anizi⁴^*, Norah Alshuraym, PharmD⁴^*, Maybelle Ballili⁴^* and Bader Alahmari, MD^1,2,3,4^*

¹King Abdullah International Medical Research Center, Riyadh, Saudi Arabia
²Saudi Scientific Society of Blood and Marrow Transplantation (SSBMT), Riyadh, Saudi Arabia
³College of Medicine, King Saud bin Abdulaziz University for Health Sciences, Riyadh, Saudi Arabia
⁴King Abdulaziz Medical City, Ministry of National Guard – Health Affairs, Riyadh, Saudi Arabia
⁵King Abdulaziz Medical City, Ministry of National Guard – Health Affairs, Sarasota, FL

10:00 AM

519

Clinical Management Bundle for Patients with Sickle Cell Disease: Improving Completion of Age-Specific Screening Tests and Disease-Modifying Therapy Use

Cynthia F Norris, MD¹^*, Leigh Foppert, DNP-NE, CRNP, RN²^*, Elizabeth Brooks, MPH, MSSP³^*, Alicia Brandemarte, MS³^*, Rebecca Brugger, MSN, RN, CPHON²^*, Julia B Sabrick, MPH²^*, Kyisha Knox, BSN, RN²^*, Alexandra Kaspin, MSN, RN,²^*, Sharena Robinson²^*, Therese McKnight, MSN, CRNP, RN⁴^*, Elizabeth Pumiglia, MSN, CRNP, RN²^*, Drew H Scoles, MD, PhD²^*, Brian Maloney²^* and Alexis Thompson, MD, MPH⁵

¹Division of Hematology, Children's Hospital of Philadelphia, Wenonah, NJ
²Children's Hospital of Philadelphia, Philadelphia, PA
³Population Health Innovation Team, Children's Hospital of Philadelphia, Philadelphia, PA
⁴Children's Hospital of Philadelphia, Phildelphia, PA
⁵Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA

10:15 AM

520

Building Capacity in Sub-Saharan Africa to Address Sickle Cell Disease: The Consortium on Newborn Screening in Africa (CONSA)

Charles Kiyaga, PhD¹^*, Emmanuela Eusebio Ambrose, MD², Bernard Onyango Awuonda, MD³^*, Lulu Chirande, MD⁴^*, Catherine Mupela Chunda-Liyoka, MD, MSc⁵, Livingstone Gayus Dogara, FMCPath⁶^*, Patience Camille Franklin, MD⁷^*, Obiageli E Nnodu, MD⁸, Catherine I. Segbefia, MBChB⁹^*, Russell E. Ware¹⁰ and Theresa Louise Coetzer, PhD¹¹

¹Central Public Health Laboratories, Kampala, UGA
²Paediatric department, haematology section, Bugando Medical Centre, Mwanza, Tanzania
³Jaramogi Oginga Odinga Teaching and Referral Hospital, KISUMU, Kenya
⁴Muhimbili National Hospital and Muhimbili University of Health and Allied Sciences, Dar Es Salaam, Tanzania, United Republic of
⁵University Teaching Hospitals- Children’s Hospital,, Lusaka, Zambia
⁶Kaduna State University, Kaduna, Nigeria
⁷John F. Kennedy Medical Center, Monrovia, Liberia
⁸University of Abuja, Abuja, Nigeria
⁹University of Ghana Medical School, Accra, Ghana
¹⁰Global Health Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
¹¹University of the Witwatersrand, Johannesburg, South Africa

10:30 AM

521

Baseline Neurological Morbidity Assessment in Adult Patients with Sickle Cell Disease : The Montreal Brain-SCD Cohort

Chrystelle Charles, MD¹^*, Olena Bereznyakova, MD^2,3,4^*, Gregory Jacquin, MD^2,3,4^*, Jade Bergeron, RN⁵^*, Amer Yassine Hafsaoui, RN⁵^*, Valerie Fraile, PhD⁶^*, Nancy Van Synghel, RN⁵^*, Anais Elodie Arethuse, RN⁷^*, Costa Kazadi, MD, MSc³^*, Jonathan St-Onge, MD¹^*, Sara-Maude Desforges, MD⁸, Olivier Pouliot, MD¹^*, Phalica Georges⁹^*, Philippe Desmarais, MD, MHSc^1,3,10^*, Christian Stapf, MD^2,3,4^* and Stephanie Forte, MD, MSc^1,3,11,12

¹Faculty of Medicine, University of Montreal, Montreal, QC, Canada
²Department of Neurosciences, University of Montreal, Montreal, QC, Canada
³CRCHUM, Montreal, QC, Canada
⁴Division of Neurology, CHUM, Montreal, QC, Canada
⁵Department of Nursing, CHUM, Montreal, QC, Canada
⁶Division of Psychology and Neuropsychology, CHUM, Montreal, QC, Canada
⁷CHUM, Montreal, Canada
⁸Centre Hospitalier de l'Université de Montréal (CHUM), Montreal, CAN
⁹Faculty of Neurosciences, University of Montreal, Montreal, QC, Canada
¹⁰Division of Geriatric Medicine, CHUM, Montreal, QC, Canada
¹¹Centre Hospitalier de l'Université de Montréal (CHUM), Montreal, QC, Canada
¹²Division of Hematology and Medical Oncology, CHUM, Montreal, QC, Canada

10:45 AM

522

Enhanced Artificial Intelligence (AI)-Driven Prediction of Vaso-Occlusive Crises in Sickle Cell Disease: Precision through Advanced Machine-Learning Frameworks and Digital Remote Monitoring

Kim Z Summers, PhD¹^*, Orlando Agrippa, BSc MBA¹^*, David Ade-Odunlade, BSc¹^*, Kofi A. Anie, PhD, MBE²^*, Paul Telfer, MD, FRCP³^* and Sanne Lugthart, MD⁴^*

¹Sanius Health, London, United Kingdom
²Central Middlesex Hospital, London, United Kingdom
³Royal London Hospital, Barts Health NHS Trust, London, United Kingdom
⁴University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, GBR

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^*signifies non-member of ASH

900.O2.6 900. Health Services and Quality Improvement: Hemoglobinopathies: Navigating and Optimizing Healthcare Systems