65th ASH Annual Meeting & Exposition: 901. Health Services and Quality Improvement – Non-Malignant Conditions: Sickle Cell Disease Across the Spectrum

Symposia: Health Services and Quality Improvement - Non-Malignant Conditions Oral and Poster Abstracts
Oral

Sickle Cell Disease, Clinical Practice (Health Services and Quality), Hemoglobinopathies, Diseases

Pacific Ballroom Salons 15-17 (Marriott Marquis San Diego Marina)

Moderators:

Meghan D Drayton Jackson, DO, Nationwide Children's Hospital and Andrew Ross Wickman O'Brien, MD, Division of Hematology/Oncology, Department of Medicine, Indiana University School of Medicine

Disclosures:

O'Brien: Pfizer: Membership on an entity's Board of Directors or advisory committees.

From transcranial dopplers, pain, and transition planning; Implementing quality and innovative approaches to caring for patients with SCD

2:00 PM

247

Successful Implementation Trial to Improve Stroke Risk (TCD) Screening in Children with Sickle Cell Anemia: A Roadmap to Care Enhancement

Julie Kanter, MD¹, Shannon Phillips, PhD, RN²^*, Alyssa M. Schlenz, PhD³^*, Cathy Melvin, PhD, MPH⁴^*, Robert J. Adams, MD, MS⁵^*, Daniel Humphrey²^* and Martina Mueller, PhD²^*

¹Division of Hematology and Oncology, University of Alabama At Birmingham, Birmingham, AL
²College of Nursing, Medical University of South Carolina, Charleston, SC
³Department of Pediatrics, Medical University of South Carolina, Charleston, SC
⁴Department of Public Health Sciences, Division of Health Behavior and Health Promotion, Medical University of South Carolina, Charleston, SC
⁵Department of Neurology, Medical University of South Carolina, Charleston, SC

2:15 PM

248

Implementing a Structured Health Care Transition (HCT) Process for Sickle Cell Disease Using Quality Improvement: Results from the Sickle Cell Trevor Thompson Transition Project HCT Learning Collaborative

Ifeyinwa Osunkwo, MD, MPH^1,2, Jennifer Cornette, MHA³^*, Cheryl Courtlandt, MD⁴^*, Myra Robinson, PhD⁵^*, Patience White, MD, MA^6,7^*, Margaret McManus, MHS⁶^*, Laura Noonan, MD⁴^*, Payal Desai, MD⁸, Charity Patterson, PhD, MSPH⁹^*, James R. Eckman, MD¹⁰, Ramona Lawrence, DrPH, MPH¹¹ and ST3P-UP Study Investigators¹²^*

¹Maya Angelou Center for Health Disparities, Wake Forest University, Wake Forest, NC
²Ify Osunkwo MD, MPH, formerly Director SCD Enterprise Atrium Health; Currently Chief Patient Officer / SVP Forma therapeutics, Colts Neck, MA
³Levine Cancer Institute, Atrium Health, Charlotte, NC
⁴Center for Advancing Pediatric Excellence, Levine Childrens Hospital Atrium Health, Wake Forest Baptist Health: Atrium Health Wake Forest Baptist, Charlotte, NC
⁵Department of Cancer Biostatistics, Levine Cancer Institute, Atrium Health, Charlotte, NC
⁶Co Director, Got Transition®, The National Alliance to Advance Adolescent Health, District of Columbia, DC
⁷George Washington University School of Medicine and Health Sciences, District of Columbia, DC
⁸Levine Cancer Institute, Department of Hematology, Atrium Health, Charlotte, NC
⁹Department of Physical Therapy, University of Pittsburgh, School of Health and Rehabilitation Services, Pittsburgh, PA
¹⁰Emory University, Decatur, GA
¹¹Jiann-Ping Hsu College of Public Health, Georgia Southern University, Statesboro, GA
¹²ST3P-UP Study Transition Learning Collaborative, Colts Neck, NJ

2:30 PM

249

Real-World Implementation of Sickle Cell Transition Programs As Part of a State Quality Improvement Network

Ofelia A. Alvarez, MD¹, Carrie Gann, APRN²^*, Debbie Ringdahl, APRN³^*, Manisha Bansal, MD⁴^*, Farranaz Alvarez-Nunez, MD⁵^*, William Slayton, MD³, Reema Kashif, MD³^*, Tung Wynn, MD³, Elizabeth Bradley, RN⁵^*, Kathryn Diener, MSN RN⁵^*, Katrina Rivers, MSN RN⁶^*, Sherry Buchman, RN MSN⁶^*, Angela Chatfield, RN⁶^*, Monica Heldreth, RN⁶^*, Virginia Crowe, RN⁷^* and Sue Butts-Dion, RN⁷^*

¹Department of Pediatrics, Division of Pediatric Hematology/Oncology, Univ. of Miami School of Med., Miami, FL
²Johns Hopkins All Children's Hospital, St. Petersburg, FL
³University of Florida, Gainesville, FL
⁴Nemours Health, Jacksonville, FL
⁵Orlando Health Arnold Palmer, Orlando, FL
⁶Florida Department of Health, Tallahassee, FL
⁷National Institute for Children's Health Quality, Boston, MA

2:45 PM

250

The Impact of Socio-Economic Determinants of Health on PedsQL and Pain Outcomes Among Individuals with Sickle Cell Disease

Yogindra Persaud, MD¹^*, Victoria Okhomina²^*, Andrew M Heitzer, PhD³^*, Hamda Khan¹^*, Jason Robert Hodges, PhD⁴, Parul Rai, MBBS⁵, Clifford M Takemoto, MD⁵, Deepika S. Darbari, MBBS, MS⁶, Guolian Kang, PhD, MS² and Doralina Anghelescu¹^*

¹St. Jude Children's Research Hospital, Memphis, TN
²Department of Biostatistics, St. Jude Children’s Research Hospital, Memphis, TN
³Department of Psychology and Biobehavioral Sciences, St. Jude Children's Research Hospital, Memphis, TN
⁴Hematology, St. Jude Children's Research Hospital, Memphis, TN
⁵Department of Hematology, St. Jude Children’s Research Hospital, Memphis, TN
⁶Division of Hematology, Center for Cancer and Blood Disorders, Children's National Hospital, Washington, DC

3:00 PM

251

Novel Multidimensional Pain Assessment Tool Is a Feasible, Valid, and Enjoyable Approach to Communication of Pain Symptoms in Pediatric Sickle Cell Disease

Erica Mamauag, MD¹, Charles R. Jonassaint, PhD, MHS¹, Jude Jonassaint, RN¹^*, Li Wang²^*, Nathan Matten, BS²^* and Cheryl Hillery, MD³

¹University of Pittsburgh Medical Center, Pittsburgh, PA
²University of Pittsburgh, Pittsburgh
³Children's Hospital of Pittsburgh, Pittsburgh, PA

3:15 PM

252

What Interval of Daily Pain Assessment Is Required to Reliably Diagnose Chronic Pain in Sickle Cell Disease? the Pisces Study

Wally R Smith, MD¹ and Donna McClish, PhD²^*

¹Division of General Internal Medicine, Department of Medicine, Virginia Commonwealth University, Richmond, VA
²VCU School of Medicine, Richmond, VA

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^*signifies non-member of ASH

901.O4.6 901. Health Services and Quality Improvement – Non-Malignant Conditions: Sickle Cell Disease Across the Spectrum