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114.O1.6 114. Sickle cell Disease, Sickle Cell Trait and Other Hemoglobinopathies, Excluding Thalassemias: Clinical and Epidemiological: Hot Topics in Clinical Care and Genomic Factors

Symposia: Sickle cell Disease, Sickle Cell Trait and Other Hemoglobinopathies, Excluding Thalassemias: Clinical and Epidemiological Program: Oral and Poster Abstracts
Type: Oral
Hematology Disease Topics & Pathways:
Research, adult, elderly, Clinical Research, real-world evidence, Therapies, registries, Study Population, Human, Maternal Health
Saturday, December 9, 2023: 2:00 PM-3:30 PM
Room 31 (San Diego Convention Center)
Emily Limerick, MD, NIH and Imo J. Akpan, MD, Columbia University
Akpan: Pharmacosmos Therapeutics Inc: Consultancy, Honoraria, Membership on an entity's Board of Directors or advisory committees, Speakers Bureau.
When we think about sickle cell disease, hemolysis, severe anemia, and acute painful crises come to mind. As patients with this disorder achieve normal life milestones, this session highlights the the reality of daily pain in between the acute pain episodes, challenges of pregnancy, and new hematologic findings about getting older.
2:00 PM

Mariane De Montalembert, MD, PhD1, Pablo Bartolucci, MD, PhD2*, Gonzalo De Luna, MD3*, Anoosha Habibi, MD4, Scylia Alexis-Fardini, MD5*, Maryse Etienne-Julan, MD6*, Gylna Loko, MD7*, Giovanna Cannas, MD8*, Jean-Benoit Arlet, MD, PhD9*, Latifatou Boukari, MD10*, Sylvain Le Jeune, MD11* and Laure Joseph, MD12*

1Department of General Pediatrics and Pediatric Infectious Diseases, Sickle Cell Center, Necker-Enfants Malades Hospital, Paris, France
2Service de Médecine Interne, CHU Henri Mondor, Créteil, France
3Sickle Cell Referral Center, Henri-Mondor University Hospital- UPEC, AP-HP, Creteil, France
4Sick, Hopital Henri Mondor, Creteil Cedex, France
5Hôpital RICOU - CHU Pointe-à-Pitre Abyme, Pointe à Pitre, Guadeloupe
6CHU De Pointe-à-Pitre, Pointe-à-Pitre, Guadeloupe
7CHU Martinique, Le Lamentin, Martinique
8Hopital Edouard Herriot, Lyon, France
9Hôpital européen Georges-Pompidou, Paris, France
10Hôpital Saint-Antoine, Paris, France
11Hôpital Avicenne, Bobigny, France
12Necker Hospital (APHP), Paris, France

2:15 PM

Modupe Idowu, MD1, Michael R. DeBaun, MD, MPH2, Arthur Burnett, MD, MBA3*, Deepika S. Darbari, MBBS, MS4, Soheir Adam, MD, FRCPath5, Alan Randall Anderson, MD6, Julie Kanter, MD7, Henny H. Billett, MD8, Darla K. Liles, MD9, Robert S. Nickel, MD, MSc10, Laura M. Decastro, MD11, Biree Andemariam, MD12, Gershwin Theophilus Blyden, MD, PhD13*, Matthew M. Heeney, MD14, Poornima Ramadas, MD15, Morgan L. McLemore, MD16,17, Yogita Kolekar18*, Dramane Laine, PhD19*, Jincy Paulose, MD19*, Rajendra Sarkar18*, Mary Beth Vignogna19* and Fuad El Rassi, MD16,17

1UTHealth McGovern Medical School, Houston, TX
2Vanderbilt-Meharry Center for Excellence in Sickle Cell Disease, Vanderbilt University School of Medicine, Nashville, TN
3Brady Urological Institute, Johns Hopkins Medical Institutions, Baltimore, MD
4Division of Hematology, Center for Cancer and Blood Disorders, Children's National Hospital, Washington, DC
5Duke Adult Comprehensive Sickle Cell Center, Duke University, Durham, NC
6PRISMA Health Comprehensive Sickle Cell Disease Program, University of South Carolina School of Medicine, Greenville, SC
7Adult Sickle Cell Program, University of Alabama Birmingham, Birmingham, AL
8Albert Einstein College of Medicine, Bronx, NY
9East Carolina University Health, Brody School of Medicine, Greenville, NC
10Comprehensive Sickle Cell Disease Program, Children's National Hospital, Washington, DC
11University of Pittsburgh Medical Center, Pittsburgh, PA
12New England Sickle Cell Institute, University of Connecticut Health, Farmington, CT
13Foundation for Sickle Cell Disease Research, Hollywood, FL
14Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, Boston, MA
15Feist-Weiller Cancer Center, LSU Health Shreveport, Shreveport, LA
16Department of Hematology and Medical Oncology, Emory University School of Medicine, Atlanta, GA
17Georgia Comprehensive Sickle Cell Center at Grady Health System, Atlanta, GA
18Novartis Healthcare Pvt. Ltd., Hyderabad, India
19Novartis Pharmaceuticals Corporation, East Hanover, NJ

2:30 PM

Dunia Hatabah, MD1, Nitya Bakhsi, MD2*, Lou ann Brown, PhD3*, Frank Harris3*, Deborah Leake, NP2*, Rawan Korman, MD1*, Christopher Rees, MD2*, Mark Griffiths, MD2*, Carlton Dampier, MD2 and Claudia R. Morris, MD2

1Department of Pediatrics, Emory University School of Medicine, Atlanta, GA
2Department of Pediatrics, Emory University School of Medicine and Children’s Healthcare of Atlanta, Atlanta, GA
3Emory University School of Medicine, Atlanta, GA

2:45 PM

Oleg Sostin, MD, MCR1*, Rima Pai, MPH2*, Mehndi Dandwani, MBBS3 and Christian Espana-Schmidt, MD, FACP4*

1Danbury Hospital, Danbury, CT
2Nuvance Health, Danbury, CT
3University of Iowa Hospitals and Clinics, Iowa, IA
4CIFC, Danbury, CT

3:00 PM

Julie Kanter, MD1, Parth Patwari, MD, PhD2*, Payal Desai, MD3, Kenneth I. Ataga, MD4, Shelley E. Crary, MD, MS5, Sophie Lanzkron, MD6, Joshua Field, MD7, Yu-Che Chung2*, Linda T. Wang2*, Björn Mellgård2, Van Anh (Vika) Nguyen2* and Victor R. Gordeuk, MD8

1Department of Medicine, University of Alabama, Birmingham, AL
2Takeda Development Center Americas, Inc., Cambridge, MA
3Levine Cancer Institute, Department of Hematology, Atrium Health, Charlotte, NC
4Center for Sickle Cell Disease, University of Tennessee Health Sciences Center, Memphis, TN
5Department of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, AR
6Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD
7Medical College of Wisconsin, Versiti, Milwaukee, WI
8Department of Medicine, University of Illinois Chicago, Chicago, IL

3:15 PM

Anna Sowa, MD1*, William Kudzi2*, Vivian Paintsil3*, Amma A. Benneh-Akwasi Kuma, MD4, Catherine I. Segbefia, MBChB5*, Edeghonghon Olayemi, MBBS, MSc6*, David Adjei7*, Anastasia Bruce, MD8*, Jeff Gruen, MD9*, Ellis Owusu-Dabo3*, Solomon Fiifi Ofori-Acquah2 and The SickleGenAfrica Network10*

1Yale New Haven Hosptial, Middletown, CT
2University of Ghana, West African Genetic Medicine Centre, Accra, Ghana
3Kwame Nkrumah University of Science and Technology, Kumasi, Ghana
4Department of Hematology, University of Ghana, Accra, Ghana
5Department of Child Health, University of Ghana Medical School, Accra, Ghana
6University of Ghana, Accra, Greater Accra, GHA
7University of Ghana, School of Biomedical and Allied Health Sciences, Accra, Ghana
8University of Ghana, University of Ghana Medical School, Accra, Ghana
9Yale Medical School, New Haven, CT
10West African Genetic Medicine Centre, Accra, Ghana

*signifies non-member of ASH