-Author name in bold denotes the presenting author
-Asterisk * with author name denotes a Non-ASH member
Clinically Relevant Abstract denotes an abstract that is clinically relevant.

PhD Trainee denotes that this is a recommended PHD Trainee Session.

Ticketed Session denotes that this is a ticketed session.

904. Outcomes Research: Hemoglobinopathies: Poster III

Symposia: Outcomes Research: Hemoglobinopathies Program: Oral and Poster Abstracts
Type: Poster
Monday, December 9, 2024: 6:00 PM-8:00 PM
Halls G-H (San Diego Convention Center)

Akshat Jain, MD, MPH1,2, Lisa Roberts, DrPH, MSN, FNP-BC, CHES3* and Safiye Sahin, PhD4*

1Clinical Medicine and Pediatrics, Division of Hematology,Oncology and Cell Therapy, Loma Linda University School of Medicine, Redlands, CA
2School of Public Health, Loma Linda University School of Public Health, Loma Linda, CA
3Loma Linda University School of Nursing, Loma Linda, CA
4Loma Linda School of Nursing, Loma Linda, CA

Dominique Bulgin, PhD, RN1 and Amber Carmody, MS2*

1College of Nursing, The University of Tennessee, Knoxville, Knoxville, TN
2The University of Tennessee, Knoxville, Knoxville, TN

Joshua C. Laperche1*, Alka Apudhyay, MA1*, Michelle Eakin, PhD2*, Alexander A Boucher, MD3, Laura M. DeCastro, MD, MHSc4, Stephanie H. Guarino, MD5*, Robert Kribs, MD6*, Wally R Smith, MD7, Vannesia Morgan-Smith, PhD, MSN8*, Andrew RW O'Brien, MD9, Ashley Lauriello, MSN CRNP1*, Jane A. Little, MD10, Charlene Sylvestre, NP11* and Sophie Lanzkron, MD12

1Johns Hopkins University, Baltimore, MD
2Pulm, Johns Hopkins University, Baltimore, MD
3Division of Pediatric Hematology and Oncology/Division of Hematology, Oncology, and Transplantation, University of Minnesota, Minneapolis, MN
4University of Pittsburgh Heart, Lung, Blood and Vascular Medicine Institute, Department of Medicine, Pittsburgh, PA
5ChristianaCare, Wilmington, DE
6University of Kansas Health System, Kansas City
7Virginia Commonwealth University, Richmond, VA
8University of Maryland Medical System, Upper Marlboro, MD
9Division of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN
10University of North Carolina, Chapel Hill, NC
11Boston University School of Medicine, Boston, MA
12Thomas Jefferson University, Baltimore, MD

Parul Rai, MD, MBBS1, Rohith Jesudas, MBBS2, Guolian Kang, PhD3, Clifford M. Takemoto, MD4, Yunusa Olufadi1*, Pei-Lin Chen, MPH5* and Phillip A Doerfler, PhD1,6

1St. Jude Children's Research Hospital, Memphis, TN
2St Judes Children's Research Hospital, Memphis, TN
3Department of Biostatistics, St. Jude Children's Research Hospital, Memphis, TN
4Department of Hematology, St. Jude Children's Research Hospital, Memphis, TN
5St. Jude Children’s Research Hospital, Memphis, TN
6Versiti Blood Research Institute, Milwaukee

Ibrahim Karabayir1*, Robert L. Davis, MD2*, Lokesh Chinthala3*, Parul Rai, MD, MBBS4,5,6, Dan McGuire3*, Jane S Hankins, MD, MS4,7 and Oguz Akbilgic, PhD8*

1Wake Forest Baptist Health, Winston Salem, NC
2Center for Biomedical Informatics, University of Tennessee Health Science Center, Memphis, TN
3University of Tennessee Health Science Center, Memphis, TN
4St. Jude Children's Research Hospital, Memphis, TN
5Department of Hematology, St. Jude Children’s Research Hospital, Memphis, TN
6Department of Hematology, St. Jude Children's Research Hospital, Memphis, TN
7Departments of Hematology and Global Pediatric Medicine, St. Jude Children’s Research Hospital, Memphis, TN
8Wake Forest Baptist Health, Winston-Salem, NC

Kevin Y Xu, MD, MPH1*, Terri Victoria Newman, MS, PharmD2*, Lakeya S. McGill, PhD3*, Enrico M Novelli, MD, MS4, Cheryl Hillery, MD5, Joanna L Buss, MS6*, Ruizi Huang, MS7*, Joanne Salas, MPH7*, Fanghong Dong, MSN PhD7*, Dustin Stwalley, MA7*, Shiyuan A Liu, MD8, Jeffrey Scherrer, PhD7*, Tashalee R Brown, MD, PhD9*, Taewoo Park, MD MS10*, Marc R Larochelle, MD MPH11*, Richard A Grucza, PhD12* and Charles R. Jonassaint, PhD, MHS13

1Washington University School of Medicine, ST LOUIS, MO
2University of Pittsburgh School of Pharmacy, Pittsburgh, PA
3Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, PA
4Vascular Medicine Institute, Department of Medicine, University of Pittsburgh, Pittsburgh, PA
5University of Pittsburgh School of Medicine, Pittsburgh, PA
6Washington University School of Medicine, St. Louis
7Saint Louis University, St. Louis
8Washington University, St. Louis
9UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, CA
10University of Pittsburgh, Pittsburgh
11Boston Medical Center, Boston
12Saint Louis University School of Medicine, St Louis, MO
13University of Pittsburgh Medical Center, Pittsburgh, PA

Marwah Farooqui, DO1, Insia Rizvi, MBBS2, Lewis L Hsu, MD, PhD3, Santosh L. Saraf, MD1, Jin Han, PharmD4*, Taif Hassan5*, Robert Molokie, MD6*, Franklin Njoku, MD1* and Gelila Goba, MD, MPH7*

1Division of Hematology/Oncology, University of Illinois Chicago, Chicago, IL
2Division of Hematology and Oncology, University of Illinois Chicago, Chicago, IL
3Sickle Cell Center / Pediatric Hematology-Oncology, University of Illinois at Chicago, Chicago, IL
4College of Pharmacy, University of Illinois Chicago, Chicago, IL
5University of Illinois At Chicago, Chicago, IL
6Division of Hematology Oncology, University of Illinois, Chicago
7Department of Obstetrics & Gynecology, University of Illinois, Chicago

Rima Zahr, DO1*, Yu Bi, MS2*, Subodh Selukar, PhD2*, Stephen Gottschalk, MD3, Brandon M Triplett, MD3*, Alexis Kristine Leonard, MD4 and Akshay Sharma, MBBS3

1University of Tennessee Health Science Center, Memphis, TN
2Department of Biostatistics, St. Jude Children’s Research Hospital, Memphis, TN
3Department of Bone Marrow Transplantation and Cellular Therapy, St. Jude Children's Research Hospital, Memphis, TN
4Department of Hematology, St. Jude Children's Research Hospital, Memphis, TN

Sara-Maude Desforges, MD1, Kevin H.M. Kuo, MD, MSc, FRCPC2,3, Maryline Couette, PhD4*, Sebastien Beland, PhD5*, Olena Bereznyakova, MD6,7,8*, Christian Stapf, MD6,7,8*, Gregory Jacquin, MD6,7,8*, Valerie Fraile, PhD9*, Jade Bergeron, RN10*, Philippe Desmarais, MD, MHSc1,7,11*, Amer Yassine Hafsaoui, RN10*, Costa Kazadi, MD, MSc7*, Nancy Van Synghel, RN10*, Florence Blais, MD12, Mathias Castonguay, MD1, Justine Roy, MD1*, Nafanta Fadiga, BSc13*, Mireille Fortier-St-Pierre, RN10*, Denis Soulieres, MD, MSc1,7,14*, Pablo Bartolucci, MD, PhD15,16* and Stephanie Forte, MD, MSc1,7,14

1Faculty of Medicine, University of Montreal, Montreal, QC, Canada
2Division of Hematology, University of Toronto, Toronto, ON, Canada
3University Health Network, Toronto, ON, Canada
4Univ Paris Est Creteil, CARMAS, Creteil, F-94010, France;, Creteil, France
5Faculty of Education Science, University of Montreal, Montreal, QC, Canada
6Division of Neurology, CHUM, Montreal, QC, Canada
7CRCHUM, Montreal, QC, Canada
8Department of Neurosciences, University of Montreal, Montreal, QC, Canada
9Division of Psychology and Neuropsychology, CHUM, Montreal, QC, Canada
10Department of Nursing, CHUM, Montreal, QC, Canada
11Division of Geriatric Medicine, CHUM, Montreal, QC, Canada
12Department of Medicine, Laval University, Quebec, QC, Canada
13Queens University, Kingston, ON, Canada
14Division of Hematology and Medical Oncology, CHUM, Montreal, QC, Canada
15Université Paris-Est Créteil, INSERM, IMRB, Laboratory of excellence LABEX GRex, Créteil, France
16Hematology Department, Sickle Cell Referral Center, Department of Internal Medicine, Henri-Mondor University Hospital- UPEC, AP-HP, Créteil, France

Phalica Georges1*, Sophie Marsolais, MD2*, Chrystelle Charles, MD2*, Amer Yassine Hafsaoui, RN3*, Jade Bergeron, RN3*, Barbara Fritz, SW4*, Nancy Van Synghel, RN3*, Valerie Fraile, PhD5*, Nathalie Fournier, RN6*, Melissa Leblanc, RN6*, Lauren Arena, MD2, Serge Sultan, PhD7*, Nancy Robitaille, MD8, Leandra Desjardins, PhD7*, Nathalie Gaucher, MD, PhD8*, Yves D Pastore, MD8 and Stephanie Forte, MD, MSc2,9,10,11

1Faculty of Neurosciences, University of Montreal, Montreal, QC, Canada
2Faculty of Medicine, University of Montreal, Montreal, QC, Canada
3Department of Nursing, CHUM, Montreal, QC, Canada
4Department of Social Work, CHUM, Montreal, QC, Canada
5Division of Psychology and Neuropsychology, CHUM, Montreal, QC, Canada
6Department of Nursing, CHU Sainte-Justine, Montreal, QC, Canada
7Department of Psychology, CHU Sainte-Justine, Montreal, QC, Canada
8Department of Pediatrics, CHU Sainte-Justine, Montreal, QC, Canada
9Department of Pediatrics, Division of Hemato-Oncology, CHU Sainte-Justine, Montreal, QC, Canada
10Department of Medicine, CHUM, Montreal, QC, Canada
11CRCHUM, Montreal, QC, Canada

Saumya Easaw, MD1*, Mariam Kayle, PhD2, Elliott Fisher, MS3*, Camila Reyes4*, Nancy Crego, PhD, RN, CHSE2*, John J Strouse, MD, PhD5, Edward A. Copelan, MD6 and Payal Desai, MD7

1Levine Cancer Institute, Atrium Health, Charlotte, NC
2School of Nursing, Duke University, Durham, NC
3Duke Office of Clinical Research, Duke University School of Medicine, Durham, NC
4School of Medicine, Duke University, Durham, NC
5Duke University School of Medicine, Durham, NC
6Department of Hematologic Oncology and Blood Disorders, Atrium Health Levine Cancer Institute, Charlotte, NC
7Levine Cancer Institute, Atrium Health, Wake Forest School of Medicine, Charlotte, NC

Ashley Lai, BSc1*, Kim Summers, PhD, MSc, BSc2*, Orlando Agrippa, BSc MBA2*, Kofi A. Anie, PhD, MBE3*, Paul Telfer, MD, FRCP4* and Sanne Lugthart, MD5*

1Sanius Health, London, ENG, United Kingdom
2Sanius Health, London, United Kingdom
3Haematology and Sickle Cell Centre, London North West University Healthcare NHS Trust & Imperial College London, London, ENG, United Kingdom
4Royal London Hospital, Barts Health NHS Trust, London, United Kingdom
5University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, GBR

Kim Summers, PhD, MSc, BSc1*, Orlando Agrippa, BSc MBA1*, Kofi A. Anie, PhD, MBE2*, Paul Telfer, MD, FRCP3* and Sanne Lugthart, MD4*

1Sanius Health, London, United Kingdom
2Central Middlesex Hospital, London, United Kingdom
3Royal London Hospital, Barts Health NHS Trust, London, United Kingdom
4University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, GBR

*signifies non-member of ASH