66th ASH Annual Meeting: 904. Outcomes Research: Hemoglobinopathies: Poster I

Symposia: Outcomes Research: Hemoglobinopathies Oral and Poster Abstracts
Poster

Research, Sickle Cell Disease, Adult, Clinical Practice (Health Services and Quality), Thalassemia, Clinical Research, Health outcomes research, Diversity, Equity, and Inclusion (DEI), Hemoglobinopathies, Pediatric, Supportive Care, Diseases, Patient-reported outcomes, Treatment Considerations, Adverse Events, Young adult , Study Population, Human

Halls G-H (San Diego Convention Center)

2301

Intersection of Pain-Related Healthcare Utilization with Neighborhood Factorsin Adults Living with Sickle Cell Disease

Rhonda Smith-Wright, PhD¹^*, Laura Samuel, PhD²^*, Nancy Perrin, PhD²^*, Sarah Slone, PhD, DNP²^*, Claire Petchler, BA, RN, CCRN²^* and Sophie Lanzkron, MD^3,4

¹Emory University School of Medicine, Baltimore, MD
²Johns Hopkins University School of Nursing, Baltimore
³Sidney Kimmel College of Medicine, Thomas Jefferson University, Philadelphia, PA
⁴Division of Hematology, Thomas Jefferson University Hospital, Philadelphia, PA

2302

Pre-Transplant Liver Fibrosis Predicts Poor Overall Survival Following Hematopoietic Stem Cell Transplantation for Sickle Cell Disease

Priyanshi Maurya¹^*, Jingchen Liang, M.S²^*, Daniel Prior, M.D¹^*, Sai Prasad Ramachandran, MBBS¹^*, Yanhong Deng, M.S³^* and Lakshmanan Krishnamurti, MD⁴

¹Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, New Haven, CT
²Yale Center for Analytical Sciences, Yale School of Publich Health, New Haven, CT
³Yale Center for Analytical Sciences, Yale School of Public Health, New Haven, CT
⁴Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, Atlanta, GA

2303

Comprehensive Assessment of Adequate Nutrition in Children and Adults with Sickle Cell Disease As Determined By Dietary Guidelines for Americans

Lana Mucalo, MD¹^*, Janelle Highland, MA²^*, Nicole Steiner²^*, Jessica J. Rico¹^*, Dawn Retherford¹^*, Jane S Hankins, MD, MS³, Hamda Khan⁴^*, Michelle Brignac⁴^*, Joshua Field, MD⁵, Ashima Singh, PhD, MS⁶ and Amanda M. Brandow, DO, MS⁷

¹Medical College of Wisconsin, Milwaukee, WI
²Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Milwaukee, WI
³Memphis, TN
⁴St. Jude Children's Research Hospital, Memphis, TN
⁵Division of Hematology/Oncology, Medical College of Wisconsin, Milwaukee, WI
⁶Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Pewaukee, WI
⁷Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin and Children’s Research Institute of Children’s Wisconsin, Milwaukee, WI

2304

Age at Hematopoietic Cell Transplantation Is a Risk Factor for Transplant Associated Thrombotic Microangiopathy in Patients with Sickle Cell Disease

Sai Prasad Ramachandran, MBBS¹^*, Jingchen Liang, M.S²^*, Daniel Prior, M.D¹^*, Priyanshi Maurya^1,3^*, Yanhong Deng, M.S⁴^* and Lakshmanan Krishnamurti, MD^1,5

¹Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, New Haven, CT
²Yale Center for Analytical Sciences, Yale School of Publich Health, New Haven, CT
³Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, Patna, India
⁴Yale Center for Analytical Sciences, Yale School of Public Health, New Haven, CT
⁵Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, Atlanta, GA

2305

Voxelotor Therapy Reduces Whole Blood Adhesion to VCAM-1 and P-Selectin, and Shows Modest Improvements in Self-Reported Pain in a Real-World Clinical Setting in a Multi-Center Retrospective Analysis

Aliya U. Zaidi, PhD¹^*, Xiufeng U. Gao, MD, MSc¹^*, Jennell U. White, PhD^1,2, Lanetta Bronté-Hall, MD, MPH, MSPH³, Alex Glaros, MD⁴^*, Andrew D. Campbell, MD⁵, Olufunke Y. Martin, MD⁶, Sharon Pennington, MD⁷, Ofelia A. Alvarez, MD⁸, Indryas L. Woldie, MD⁹, Nnamdi Okeke, PharmD¹^* and Patrick C. Hines, MD, PhD^1,10

¹Functional Fluidics Inc, Detroit, MI
²Department of Pharmacology, Wayne State University School of Medicine, Detroit, MI
³The Foundation for Sickle Cell Disease Research, Hollywood, FL
⁴Children's Hospital of Michigan, Detroit, MI
⁵Center for Cancer and Blood Disorders, Children's National Medical Center, Washington, DC
⁶Center for Cancer and Blood Disorders, Children's Medical Center Dallas, Dallas, TX
⁷Mississipi Center for Advanced Medicine, Brandon, MS
⁸Division of Pediatric Hematology/Oncology, University of Miami Miller School of Medicine/Jackson Memorial Hospital, Miami, FL
⁹Karmanos Cancer Center, Detroit, MI
¹⁰Department of Pediatrics, Wayne State University School of Medicine, Detroit, MI

2306

Prevalence of Pulmonary Hypertension in Patients Hospitalized with Sickle Cell Crisis

Mrunanjali Gaddam, MD¹^*, Samridhi Sinha, MBBS, DO^2,3, Jayalekshmi Jayakumar, MD¹^*, Rabia Iqbal¹^*, Swathi Kavuri, MD¹^*, Zhenisa Hysenaj, MD⁴^*, Ana Colon Ramos, MD²^*, Sobha Atluri, MD²^*, Surbhi Singh, MBBS², Kalimullah Quadri, MD⁵^* and Maxim Shulimovich, DO⁶^*

¹Internal Medicine, The Brooklyn Hospital Center, Brooklyn, NY
²Hematology and Oncology, The Brooklyn Hospital Center, Brooklyn, NY
³Hematology and Oncology, The Brooklyn Hospital Center, New York, NY
⁴The Brooklyn Hospital Center, Brooklyn, NY
⁵Hematology and Oncology, New York Cancer & Blood Specialists, Brooklyn, NY
⁶New York Cancer & Blood Specialists, Brooklyn, NY

2307

Delayed Physical Growth and Related Factors in Pediatric Patients with Transfusion-Dependent Thalassemia

Jingyu Zhao^1,2^*, Xiao Yu^1,3^*, Jing Xu^3,4^*, Zhen Gao^2,4^*, Yanjie Liu²^*, Anni Wang^1,2^*, Jin Dong^1,2^*, Weiping Yuan^2,5, Jun Shi²^* and Zhexiang Kuang^3,6^*

¹State Key Laboratory of Experimental Hematology, National Clinical Research Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology& Blood Diseases Hospital, Chinese Academy of Medical Sciences& Peking Union Medical College, Tianjin, China
²Tianjin Institutes of Health Science, Tianjin, China
³Red Blood Cell Diseases Center & Regenerative Medicine Clinic, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China
⁴State Key Laboratory of Experimental Hematology National Clinical Research Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, China
⁵Department of Hematology, the Second Hospital of Tianjin Medical University, Tianjin, China
⁶State Key Laboratory of Experimental Hematology National Clinical Research Center for Blood Diseases, Haihe Laboratory of Cell Ecosystem, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College, Tianjin, AL, China

2308

Caregiver and Provider Reports of Symptom Severity, Functionality, and Quality of Life Lack Congruence with Patient Reports in Pediatric Sickle Cell Disease

Erica Mamauag, MD, MS¹, Cheryl Hillery, MD² and Scott Maurer, MD³^*

¹University of Louisville, Louisville, KY
²University of Pittsburgh School of Medicine, Pittsburgh, PA
³University of Pittsburgh, Pittsburgh, PA

2309

Pain-Specific Patient-Reported Outcomes Are Worse in Adults Compared to Children with Sickle Cell Disease

Melissa Azul, DO¹, Janelle Highland, MA¹^*, Nicole Steiner¹^*, Jessica J. Rico¹^*, Hamda Khan²^*, Michelle Brignac²^*, Joshua Field, MD³, Jane S Hankins, MD, MS⁴, Ashima Singh, PhD, MS⁵ and Amanda M. Brandow, DO, MS¹

¹Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Milwaukee, WI
²St. Jude Children's Research Hospital, Memphis, TN
³Division of Hematology/Oncology, Medical College of Wisconsin, Milwaukee, WI
⁴Memphis, TN
⁵Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Pewaukee, WI

2310

Thalassemia Scenario in Brazil: A Descriptive Study

Janaína Rosenburg Gioseffi, MSc¹^*, Nina Victória Menezes Melo¹^*, Fernanda Cristina dos Santos Simão¹^*, Eduardo Fróes¹^*, Nelson Hamerschlak, MD, PhD², Fábio Augusto Fedozzi¹^*, Catherine Moura F. Pinto¹^* and Sandra Loggetto, MD³^*

¹Abrasta - Brazilian Thalassemia Association, São Paulo, SP, Brazil
²Hematology, Albert Einstein Hospital, São Paulo, Brazil
³São Paulo Blood Bank - GSH Group, São Paulo, Brazil

2311

Opioid Overdose in Patients with Sickle Cell Disease, Outcomes Among Hospitalized Patients in the United States: A Nationwide Analysis

Anna Bode, DO¹^*, Aqsa Mumtaz, MD, MBBS²^*, Oscar Borja Montes, MD¹, Mohammed Quazi, PhD¹^*, Amir Sohail, MD¹^*, Christopher Smith, MD¹^* and Abu Baker Sheikh, MD¹^*

¹University of New Mexico, Albuquerque, NM
²Montefiore St. Luke's Cornwall, Newburgh, NY

2312

Underutilization of Disease-Modifying Therapies in Sickle Cell Disease: A Real-World Analysis from the ASH Research Collaborative Data Hub

Omar Niss, MD¹, Matthew Fenchel²^*, Erin Kingsley²^*, Teresa S. Latham, MA³^*, Punam Malik, MD² and Charles T. Quinn, MD, MS^4,5

¹University of Cincinnati College of Medicine, Cincinnati, OH
²Cincinnati Children's Hospital Medical Center, Cincinnati, OH
³Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
⁴College of Medicine, University of Cincinnati, Cincinnati, OH
⁵Division of Hematology, Cincinnati Children's Hospital Med. Ctr., Cincinnati, OH

2313

High Concordance between Investigator-Verified Diagnosis and Manual Data Abstraction for Sickle Cell Diagnosis Type: An ASH Research Collaborative Data Hub Validation Study

Alexis Thompson, MD, MPH¹, Ashima Singh, PhD, MS², Donna S. Neuberg, ScD³, Amanda M. Brandow, DO, MS⁴, Allison A. King, MD, PhD, MPH⁵, Sophie Lanzkron, MD⁶, Emily A. Semmel, MS⁷^*, Sam Walters, MBA^8,9^*, Susan Rogers¹⁰^*, Kathleen Hewitt, DNP, RN¹¹^* and William A. Wood, MD, MPH¹²

¹Division of Hematology, Children’s Hospital of Philadelphia, Phildelphia, PA
²Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Pewaukee, WI
³Department of Data Science, Dana-Farber Cancer Institute, Boston, MA
⁴Department of Pediatrics, Section of Hematology/Oncology/Bone Marrow Transplantation, Medical College of Wisconsin, Milwaukee, WI
⁵School of Medicine, Washington University, Clayton, MO
⁶Thomas Jefferson University, Philadelphia, PA
⁷American Society of Hematology, Washington, DC
⁸Breakthrough Healthcare, Baltimore, MD
⁹American Society of Hematology, Ellicott City, MD
¹⁰Washington, DC
¹¹ASH Research Collaborative, Gainesville, VA
¹²Division of Hematology, Department of Medicine, University of North Carolina At Chapel Hill Hospital, Chapel Hill, NC

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^*signifies non-member of ASH

904.P1.41 904. Outcomes Research: Hemoglobinopathies: Poster I