Symposia: Health Services and Quality Improvement: Hemoglobinopathies
Oral and Poster Abstracts
Oral
Research, Sickle Cell Disease, Artificial intelligence (AI), Adult, Clinical trials, Clinical Practice (Health Services and Quality), Elderly, Health outcomes research, Clinical Research, Health disparities research, Hemoglobinopathies, Supportive Care, Diversity, Equity, and Inclusion (DEI), Education, Pediatric, Patient-reported outcomes, Diseases, Gene Therapy, Real-world evidence, Treatment Considerations, Biological therapies, Registries, Young adult , Technology and Procedures, Study Population, Human, Transplantation (Allogeneic and Autologous)
Room 25
(San Diego Convention Center)
Moderators:
Akshay Sharma, MBBS, St. Jude Children's Research Hospital
and
Kerry A Morrone, MD, MS, Children's Hospital At Montefiore
Disclosures:
Sharma: Vertex Pharmaceuticals: Consultancy, Other: Clinical Trial site-PI; Sangamo Therapeutics: Consultancy; Editas Medicine: Consultancy; Medexus Inc.: Consultancy; CRISPR Therapeutics: Other: Clinical Trial site-PI, Research Funding; Novartis: Other: Clinical Trial site-PI; Beam Therapeutics: Other: Clinical Trial site-PI.
This session focuses on health services research for patients with sickle cell disease. The session highlights research which encourages shared decision making between medical providers and patients. This spans research in gene therapy as well as supportive care.
12:00 PM
Karthik Chetlapalli, MS, BS1, Ayesha Butt, MD2, Satoko Ito, MD, PhD3, Daniel Wang1, Cecelia Calhoun, MD, MBA, MPH3, Lakshmanan Krishnamurti, MD4, Ankur Pandya, PhD5* and George Goshua, MD, MSc6
1Yale School of Medicine, New Haven, CT
2Department of Internal Medicine, Yale University School of Medicine, New Haven, CT
3Section of Hematology, Department of Internal Medicine, Yale School of Medicine, New Haven, CT
4Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, Atlanta, GA
5Department of Health Policy and Management, Harvard T.H. Chan School of Public Health, Boston, MA
6Hematology-Oncology & Yale CORE, Yale School of Medicine & Yale Cancer Center, New Haven, CT
12:15 PM
Jeffrey G Edwards, MD, MPH1, Atinuke Dosunmu-Ogunbi, MD PhD1*, Morohuntodun O. Oni2*, Monica L. Hulbert, MD3 and Natasha Archer, MD, MPH4
1Boston Children's Hospital, Boston, MA
2Dana-Farber / Boston Children’s Cancer and Blood Disorders Center, Brookline, MA
3Division of Hematology/Oncology, Department of Pediatrics, Washington University School of Medicine, Saint Louis, MO
4Dana-Farber/Boston Children's Cancer and Blood Disorder Ctr., Boston, MA
12:30 PM
Alexis Thompson, MD, MPH1, Jasmine Umana, MD2*, Julia B Sabrick, MPH2*, Therese McKnight, MSN, CRNP, RN3*, Leslie D Williams, MSN, RN, CPN3*, Krupal Rana, MLS, LSSGB2*, William Baar2*, Lauren Coogle, MD2*, Osvaldo Mecado, MD2*, Char M Witmer, MD4, Angela M. Ellison, MD, MSc5* and Cynthia F Norris, MD6*
1Division of Hematology, Children’s Hospital of Philadelphia, Phildelphia, PA
2Children's Hospital of Philadelphia, Philadelphia, PA
3Children's Hospital of Philadelphia, Phildelphia, PA
4The Children's Hospital of Philadelphia, Philadelphia, PA
5Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA
6Division of Hematology, Children's Hospital of Philadelphia, Philadelphia, PA
12:45 PM
Charity I Oyedeji, MD1,2, Teagan Callaway, BS3*, Rania Mohamed, BS4*, Reena Ravi, BS3*, Richard Faldowski, PhD5*, Corey Vessels, BS6*, Miriam C Morey, PhD5* and John J Strouse, MD, PhD7
1Duke Adult Comprehensive Sickle Cell Center, Duke University, Durham, NC
2Department of Medicine, Division of Hematology, Duke University School of Medicine, Durham, NC
3Duke University Medical Center, Durham, NC
4Duke University, Cary, NC
5Duke University, Durham, NC
6Duke Physical Therapy, Duke University, Durham
7Duke University School of Medicine, Durham, NC
1:00 PM
Aimee K. Hildenbrand, PhD1,2,3*, Melanie L Pitone, MD4*, Benjamin Bear, MSW1*, Alyssa Decino, BA1*, Corinna L. Schultz, MD, MSHP5,6, Melissa A. Alderfer, PhD1,5* and Lori E. Crosby, PsyD7,8
1Center for Healthcare Delivery Science, Nemours Children's Health, Wilmington, DE
2Department of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Wilmington, DE
3Division of Behavioral Health, Nemours Children's Hospital Delaware, Wilmington, DE
4Center for Health Delivery Innovation, Nemours Children's Health, Wilmington, DE
5Department of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA
6Lisa Dean Moseley Foundation Institute for Cancer and Blood Disorders, Nemours Children's Health, Wilmington, DE
7Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH
8Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH
1:15 PM
Modesty Obasohan1,2, Catherine I. Segbefia, MBChB3,4*, Charles R. Jonassaint, PhD, MHS5, Eugenia Vicky Asare, MD6,7, Yvonne Dei Adomakoh, MBBS, MD4,7, Cheryl Hillery, MD8,9 and Olubusola Oluwole, MD, MS5
1University of Pennsylvania, Perelman School of Medicine, Philadelphia, PA
2University of Pittsburgh, Wallace, NC
3Department of Child Health, Korle Bu Teaching Hospital, Accra, Ghana
4University of Ghana Medical School, Accra, Ghana
5University of Pittsburgh Medical Center, Pittsburgh, PA
6Ghana Institute of Clinical Genetics, Accra, Ghana
7Korle Bu Teaching Hospital, Accra, Ghana
8University of Pittsburgh School of Medicine, Pittsburgh, PA
9Children's Hospital of Pittsburgh, Pittsburgh, PA
*signifies non-member of ASH
denotes an abstract that is clinically relevant.
denotes that this is a recommended PHD Trainee Session.
denotes that this is a ticketed session.