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Representing Sickle Cell Disease Health Concepts in Real World Evidence Generation: Examples from Real World Data (RWD) Initiatives and the Importance to the Sickle Cell Disease Community

Program: Special-Interest Sessions
Session: ASH Research Collaborative Data Hub Sickle Cell Disease Network: Accelerating Research and Collaborative Clinical Care through Real-World Evidence Generation
Hematology Disease Topics & Pathways:
Research, Clinical Practice (Health Services and Quality), Health outcomes research, Genetic Disorders, Clinical Research, Health disparities research, Education, Diseases, Real-world evidence, Registries
Monday, December 9, 2024, 4:30 PM-6:00 PM

Alexis Thompson, MD, MPH

Children's Hospital of Philadelphia, Philadelphia, PA

Disclosures: Thompson: Beam Therapeutics: Consultancy, Research Funding; Editas: Consultancy, Research Funding; Novartis: Research Funding; CRISPR/Vertex: Consultancy, Research Funding; Global Blood Therapeutics: Divested equity in a private or publicly-traded company in the past 24 months; bluebird bio: Consultancy, Research Funding.

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