65th ASH Annual Meeting & Exposition: 904. Outcomes Research – Non-Malignant Conditions: Blending the Old With the New: Traditional and Innovative Approaches to Determining Outcomes in Patients With Sickle Cell Disease

Symposia: Outcomes Research—Non-Malignant Conditions Oral and Poster Abstracts
Oral

Research, Clinical Practice (Health Services and Quality), Clinical Research, health outcomes research, patient-reported outcomes, Therapies, real-world evidence

Marriott Grand Ballroom 8-9 (Marriott Marquis San Diego Marina)

Moderators:

Oyebimpe Adesina, MD, MS, University of California and Alex A Boucher, MD, University of Minnesota Medical School

Disclosures:

Boucher: Takeda: Research Funding; CSL Behring: Research Funding.

This session looks at various approaches including some novel ideas to determine health outcomes in patients with sickle cll disease.

4:30 PM

1057

Understanding the Experiences of Patients with Sickle Cell Disease and Their Caregivers By Social Media Listening in the UK

Oliver Shastri, MBBS¹^*, Orlando Agrippa²^*, Laura Galimam³^*, Seraj Sharif⁴^* and Marzieh Araghi⁵^*

¹Pfizer Ltd, Surrey, ENG, GBR
²Sanius Health, London, GBR
³Lumanity, London, United Kingdom
⁴Pfizer, London, United Kingdom
⁵Pfizer Ltd, Surrey, United Kingdom

4:45 PM

1058

Individualized Prediction of Outcomes of Hematopoietic Cell Transplantation for Sickle Cell Disease: A Machine Learning Approach

Rajagopalan Subramaniam¹^*, Michael Kane, PhD²^* and Lakshmanan Krishnamurti, MD³

¹Indian Institute of Technology (IIT), Chennai, India
²Biostatistics Department, Yale School o Public Health, New Haven,, CT
³Section of Pediatric Hematology, Oncology and Bone Marrow Transplant, Yale School of Medicine, Atlanta, GA

5:00 PM

1059

Predicting Vaso-Occlusive Crises in Sickle Cell Disease through Digital, Longitudinal Tracking of Wearable Metrics and Patient-Reported Outcomes

Kim Summers, PhD, MSc, BSc¹^*, Orlando Agrippa²^*, Sanne Lugthart, MD³^*, Kofi Anie⁴^* and Paul Telfer, MD⁵^*

¹Sanius Health, London, ENG, United Kingdom
²Sanius Health, London, GBR
³University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, GBR
⁴Central Middlesex Hospital, London, GBR
⁵Blizard Institute, Queen Mary University of London, London, GBR

5:15 PM

1060

It’s Time to Act: Contextualizing the Prevalence of Sexually Transmitted Infections in Adolescents and Young Adults with Sickle Cell Disease

Joseph Walden¹^*, Joseph R Stanek, MS²^*, Leena Nahata¹^* and Susan Elizabeth Creary, MD, MSc¹

¹Nationwide Children's Hospital Research Institute, Columbus, OH
²Division of Biostatistics, Nationwide Children's Hospital, Columbus, OH

5:30 PM

1061

Impact of Neighborhood Opportunity on Missed Clinic Visits and Acute Care Utilization in Individuals with Sickle Cell Disease

Ashley Catanzarite¹^*, Jillian Bouck²^*, Megan Matthes, PA-C, MPAS, MPH³^*, Derrick L Goubeaux, DO^1,4, Julia E LaMotte, PhD^1,4^* and Seethal A Jacob, MD, MS^5,6

¹Indiana University School of Medicine, Indianapolis, IN
²Center for Pediatric and Adolescent Comparative Effectiveness Research, Indiana Unvieresity School of Medicine, Indianapolis, IN
³Riley Hospital for Children at IU Health, Indianapolis, IN
⁴Riley Hospital for Children, Indianapolis, IN
⁵Children’s Health Services Research, Indiana University School of Medicine, Indianapolis, IN
⁶Department of Pediatrics, Division of Hematology Oncology, Riley Hospital For Children, Indianapolis, IN

5:45 PM

1062

Identifying Geriatric Syndromes in Adults with Sickle Cell Disease Using the Sickle Cell Disease Functional Assessment (SCD-FA): The Sickle Cell Disease Functional Assessment Validation and Refinement (SILVR) Study

Charity I Oyedeji, MD^1,2, Richard Faldowski, PhD³^*, Bryce Reeve, PhD⁴^*, Miriam C Morey, PhD³^*, Rania Mohamed, BS⁵^*, Reena Ravi, BS⁵^*, Stephanie L Padrick, BSN, RN⁶^*, Teagan Callaway, BS⁵^* and John J Strouse, MD, PhD¹

¹Department of Medicine, Division of Hematology, Duke University School of Medicine, Durham, NC
²Claude D. Pepper Older Americans Independence Center, Center for the Study of Aging and Human Development, Duke University Medical Center, Durham, NC
³Duke University, Durham, NC
⁴Department of Population Health Sciences, Duke Universty, Durham
⁵Duke University Medical Center, Durham, NC
⁶Department of Medicine, Division of Hematology, Duke University Medical Center, Durham, NC

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^*signifies non-member of ASH

904.O1.6 904. Outcomes Research – Non-Malignant Conditions: Blending the Old With the New: Traditional and Innovative Approaches to Determining Outcomes in Patients With Sickle Cell Disease