Symposia: Outcomes Research—Non-Malignant Conditions
Oral and Poster Abstracts
Oral
Research, Sickle Cell Disease, Clinical Practice (Health Services and Quality), Clinical Research, health outcomes research, health disparities research, Hemoglobinopathies, Diversity, Equity, and Inclusion (DEI) , pediatric, patient-reported outcomes, Diseases, real-world evidence, registries, young adult , Study Population, Human
R06-R09
(Ernest N. Morial Convention Center)
Moderators:
Foluso Joy Ogunsile, MD, Johns Hopkins Kimmel Cancer Center
and
Cecelia Calhoun, MD, MBA, MPH, Washington University School of Medicine in St Louis
Disclosures:
No relevant conflicts of interest to declare.
This session explores innovations in the care of pediatric and adolescent persons with sickle cell disease
2:45 PM
Abraham Haimed, MD1, Rebecca Weiss, MD1*, Soyang Kwon, PhD2*, Rukhmi Bhat, MD, MS, DNB1,3 and Sherif M. Badawy, MD3,4
1Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL
2Stanley Manne Children's Research Institute, Ann and Robert H Lurie Childrens Hospital of Chicago, Chicago, IL
3Northwestern University Feinberg School of Medicine, Chicago, IL
4Ann %26 Robert Lurie Children's Hospital, Chicago, IL
3:00 PM
Dakshin Padmanabhan, MBBS1*, Tiffany Tucker, MA2*, Donna Murdaugh, PhD3*, Chibuzo C Ilonze, MD, MPH4, Jeffrey D. Lebensburger, DO, MSPH5 and S. Justin Thomas, PhD6*
1Pediatric Hematology/ Oncology, University of Alabama at Birmingham, Birmingham, AL
2Department of Psychology, The University of Alabama at Birmingham, Birmingham
3Institute for Cancer Outcomes and Survivorship, University of Alabama at Birmingham, Birmingham, AL
4Division of Pediatric Hematology and Oncology, Department of Pediatrics, The University of Alabama at Birmingham, Birmingham, AL
5Division of Pediatric Hematology Oncology, University of Alabama At Birmingham, Birmingham, AL
6Psychiatry, University of Alabama at Birmingham, Birmingham, AL
3:15 PM
Lilia Shen1, Sara Peterson, MD1*, Suzie Noronha, MD1 and Jessica C. Shand, MD2
1University of Rochester School of Medicine, Rochester, NY
2Paul M. Schyve Center for Bioethics, University of Rochester School of Medicine, Rochester, NY
3:30 PM
Kemar V. Prussien, PhD1,2, Haley L. Faust, BA2*, Kim Smith-Whitley, MD1,3,4, Lamia P. Barakat, PhD2,3* and Lisa A. Schwartz, PhD2,3*
1Division of Hematology, Children's Hospital of Philadelphia, Philadelphia, PA
2Division of Oncology, Children's Hospital of Philadelphia, Philadelphia, PA
3Department of Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
4Global Blood Therapeutics, San Francisco, CA
3:45 PM
S. Helen Oram, MBChB, MD, PhD, FRCP, FRCPath1,2*, Daniel Dexter, MBBS, MRCPCH3*, Jumoke Okikiolu, MBBS4*, Honor Nicholl, MBBS1*, Jack Kerwin, MBBS1*, Joshua Kader, MBBS, BSc1*, Bethan Williams, BN (Child)2,5* and Arvind Nagra, MBChB6*
1King's College London, London, United Kingdom
2Lewisham and Greenwich NHS Trust, London, United Kingdom
3Imperial College Healthcare NHS Trust, London, United Kingdom
4Guy's and St Thomas' NHS Trust, London, United Kingdom
5Roald Dahl’s Marvellous Children’s Charity, Amersham, United Kingdom
6Southampton Children's Hospital, Southampton, United Kingdom
4:00 PM
Stephanie H Guarino, MD1,2, Keshab Subedi3*, Olusegun Bakare3*, Charmaine Wright, MD, MSHP4*, Lee Pachter, DO3*, Mary Catherine Beach, MD5* and Sophie M. Lanzkron, MD6
1Nemours Dupont Hospital For Children, Wilmington, DE
2Center for Special Health Care Needs/Institute on Research in Equity and Community Health, ChristianaCare, Newark, DE
3Institute for Research on Equity and Community Health, ChristianaCare, Newark, DE
4Center for Special Health Care Needs, ChristianaCare, Newark, DE
5School of Medicine, Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD
6Division of Hematology, Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD
*signifies non-member of ASH